Myeloma Australia is the only myeloma specific organisation in Australia supporting those living with myeloma.

Myeloma Australia provides up to date information and caring support via our specialist myeloma nurses. All our services are free of charge and include:

  • Myeloma Support Nurses
  • Myeloma Support Line
  • Information and Support Groups
  • Various publications both hard copy and online
  • Access to leading experts via seminars, workshops and video links.

Myeloma Australia is a not-for-profit organisation, endorsed by the Australia Taxation Office as a deductible gift recipient (DGR) and has charity tax concessions status.

      Mission

      Myeloma Australia’s mission is to facilitate myeloma research in Australia, to support and inform those living with the disease and educate those involved in its care and treatment. Myeloma Australia is determined to raise community awareness and understanding of myeloma, and to improve patient access to the latest treatments at affordable prices.

      Purpose

      Myeloma Australia’s purpose is to:

      • enable those affected by myeloma to take control of their situation and work in partnership with their health professionals
      • support specialist clinicians and researchers and raise funds for myeloma research
      • raise awareness and understanding of the condition among health professionals and the wider community
      • create opportunities for fellowship within the myeloma community.

      Values

      Myeloma Australia’s values are:

      • The needs of people with myeloma will always come first
      • We are passionate about assisting and improving the quality of life of Australians living with myeloma
      • We understand the myeloma experience and empathise with patients and family members
      • We will operate in an inclusive and transparent manner
      • We will present an organised and professional operation

      History

      Myeloma Australia was formed in 1998 by a small number of driven people, each profoundly affected by myeloma, who discovered for themselves that diagnosis was often slow and uncertain. They found reliable information on myeloma was scarce, difficult to access and understanding, support, hope and opportunities for fellowship with those affected by the same condition hard to find. Two of our Founders – our Patron Bob Moran OAM, and our current President Brian Rosengarten – are still very much involved with Myeloma Australia.

      How We Started

      Prompted by their health professionals, three couples, Bob and Glenys Moran, Brian and Roslyn Rosengarten and Donald and Judith Brown met in August 1998 to discuss ways of encouraging the government, universities, and scientists, in fact anyone, to dedicate time and money on research into multiple myeloma.

      The meeting took place at the Cancer Council of Victoria and was facilitated by Pat Dobson, a Research and Development Officer with the Cancer Council.

      At that time their own investigations had indicated that very little scientific research was being directed towards the understanding and cure of myeloma inAustralia. So, they embarked on a mission to correct this, leading to the birth of Myeloma Victoria, which later joined with other like-minded organisations in New South Wales and South Australia to become The Myeloma Foundation of Australia, now known as Myeloma Australia.